My precious daughter, Aspen Grace Brown, earned her wings , October 14th of 2011. She was 2 years and 3 months old when she lost her battle with the force of Tay-Sachs disease. We just went through the 1 year anniversary of her passing and it seems as though the pain of her not being with us was just so much of a weight on my shoulders to not be able see what all she would be doing at this point on her young life. My wife and I Brandy have been blessed with Ms. Aspen's younger sister, Liv Alexis, that just celebrated her 2nd birthday on the 28th of August and her nine year old brother Gabriel Taz as well. We all miss her so much. Please help the word get around about this unforgivable disease that takes these precious lives. To learn about how much devastation to not just the innocent victims it has caused, but the families that are dealing with the lives of these angels being taken from us. To learn more, please take a moment to visit the very best website regarding this horrible disease,
The founder has a 10 year old daughter still fighting this heartbreaking disease. He is a true champion and leader in the race for a cure. A cure could be the means to a cure for many many other registering genetic disorders, and would be a groundbreaking discovery. Thank you all for taking the time to read this post.